'Tis the Season to be Jolly!!! Tra la la la, la la la!Here's sending you all some Cheer and Warm Wishes on Christmas, from all the Children at The Spastics Centre, Kanpur
This blog shares real time stories from The Spastics Centre, Kanpur.
Sunday, December 29, 2013
Monday, December 16, 2013
The Story of Epilepsy
There are innumerable children and adults alike in India who suffer from Epileptic fits. However. with the right care, attention and patience, one can overcome the disorder and learn to lead the good life.
In most cases, Epilepsy is highly treatable even if not completely curable. Yet, patients or caregivers can learn to control the affected child or adult with medication and even eventually learn to read the signs of an upcoming fit.
It is when the medication or treatment is not regular or controlled that sufferers succumb. As a caregiver, it is important to constantly observe the patient and spot signs of side effects or reactions early on. Furthermore, when a patient shows no progress in terms of less severe attacks or duration / frequency of attacks, it is important to revisit the treatment procedure and find another solution.
Our very own supervisor - Jaya Sharma recently (as early as 3 months ago) lost her young 27 year old daughter Vanya (fondly called - Pinky) to Epilepsy. Epilepsy is a condition patients are born with. She tried to maintain a normal life with her daughter, the compounded effects of years of medication and treatment just wasn't enough.
The child succumbed to multiple organ failure eventually.
It is important to understand that 75% of Epileptic sufferers are treatable and can live healthy lives otherwise. However, in certain cases exceptions exist and fate comes forward to play a stringent role on the heart.
This doesn't mean you lose heart, or for that matter hope. It simply means that you have to learn to truly live.
Maybe the story of Ek Naya Din can inspire you!
http://timesofindia.indiatimes.com/topic/BHU-doctor's-film-on-epilepsy-wins-acclaim
In most cases, Epilepsy is highly treatable even if not completely curable. Yet, patients or caregivers can learn to control the affected child or adult with medication and even eventually learn to read the signs of an upcoming fit.
It is when the medication or treatment is not regular or controlled that sufferers succumb. As a caregiver, it is important to constantly observe the patient and spot signs of side effects or reactions early on. Furthermore, when a patient shows no progress in terms of less severe attacks or duration / frequency of attacks, it is important to revisit the treatment procedure and find another solution.
Our very own supervisor - Jaya Sharma recently (as early as 3 months ago) lost her young 27 year old daughter Vanya (fondly called - Pinky) to Epilepsy. Epilepsy is a condition patients are born with. She tried to maintain a normal life with her daughter, the compounded effects of years of medication and treatment just wasn't enough.
The child succumbed to multiple organ failure eventually.
It is important to understand that 75% of Epileptic sufferers are treatable and can live healthy lives otherwise. However, in certain cases exceptions exist and fate comes forward to play a stringent role on the heart.
This doesn't mean you lose heart, or for that matter hope. It simply means that you have to learn to truly live.
Maybe the story of Ek Naya Din can inspire you!
http://timesofindia.indiatimes.com/topic/BHU-doctor's-film-on-epilepsy-wins-acclaim
You lift me, and I'll lift you, and we'll ascend together.
- unknown
Thursday, December 12, 2013
The Sheltered Workshop - lovely gifts made by our kids
When it comes to teaching, developing and training special children it is highly imperative to think of long-term requirements and goals.
While on the one hand, basic learning and life-skills are a major necessity, so is teaching a child to fend for themselves. Who knows what the future holds, after all.
The Spastics Centre, Kanpur runs a Sheltered Workshop in it's premises. Children with multiple disabilities are taught to create new products of various kinds from scratch with the final aim of selling them.
A dynamic team of creative professionals and volunteers help the children because several of them do not have complete control over their hands. Yet, if you ever step in and simply observe their grit and willingness to "do", you will be taken aback at how well they understand all they are taught and more so how well they make every product with patience and love!
Some of the beautiful products made by the children include lovely gift envelopes, gift bags, jute bags, pouches, keychains, greeting cards and so much MORE!
The children who work in the Sheltered Workshop usually belong to the above-18 category. They are paid a nominal sum of money to create these lovely gift items. While the money they reap may not be a lot, it is a small step towards a larger aim and goal finally. And in the end, that's what counts.
P.S
While on the one hand, basic learning and life-skills are a major necessity, so is teaching a child to fend for themselves. Who knows what the future holds, after all.
The Spastics Centre, Kanpur runs a Sheltered Workshop in it's premises. Children with multiple disabilities are taught to create new products of various kinds from scratch with the final aim of selling them.
A dynamic team of creative professionals and volunteers help the children because several of them do not have complete control over their hands. Yet, if you ever step in and simply observe their grit and willingness to "do", you will be taken aback at how well they understand all they are taught and more so how well they make every product with patience and love!
Some of the beautiful products made by the children include lovely gift envelopes, gift bags, jute bags, pouches, keychains, greeting cards and so much MORE!
The children who work in the Sheltered Workshop usually belong to the above-18 category. They are paid a nominal sum of money to create these lovely gift items. While the money they reap may not be a lot, it is a small step towards a larger aim and goal finally. And in the end, that's what counts.
Friday, December 6, 2013
Share the Story, Make a Difference!
Read the Story of World Disabled Day celebrations here:
http://lifebeyondnumbers.com/celebrating-undying-spirit-specially-abled/
Share the Story, Make a Difference!
Spread the word, cause we want to be seen and we want to be heard!
http://lifebeyondnumbers.com/celebrating-undying-spirit-specially-abled/
Share the Story, Make a Difference!
Spread the word, cause we want to be seen and we want to be heard!
Wednesday, December 4, 2013
Greetings Cards Made by the Children - Buy One Now!!!
Buy a card or two! Help the children in need. Choose from an array of beautiful designs!
Contact us by email on sckanpur@gmail.com or call us on 09454138650 to order now!
World Disabled Day
The Spastics Centre in Kanpur, a dynamic organization that serves the needs of special children in and around the city limits celebrated World Disabled Day on 3-Dec-2013.
There were a host of events to mark the day. The children first initiated the proceedings with a wonderful March Past. It was ideal to begin the celebration. A quick Welcome dance and Prayer followed.
The enthusiastic youngsters then enthralled the audience with a synchronized group Yoga performance. The guests were impressed by the sheer energy and excitement in the air. Everyone could be seeing taking pictures on their phones and enjoying the performances thoroughly. There was a lovely PT display and a game wherein the parents of the children being treated at the OPD clinic participated. The OPD clinic caters to helping the children gain better physical control over their everyday movements, special therapists work daily with the children and parents to that effect.
The solo performance by one of the beautiful young students who was dressed in a Ghagra Choli successfully captured the heart of everyone around. A quick costume show wherein the kids were dressed as little fairies, ministers and even flowers was also part of the programme. Their cute replies when asked what they were dressed as made everyone around smile at their sheer innocence and life. What captured the audience’s attention most was the Yoga display.
The young talents coordinated their efforts and performed so well, you would wonder as to whether they were professionals or not. The previous day, (2-Dec), the Centre had celebrated Sports Day, the prizes and results of which were announced at the end of the World Disabled Day celebrations. Last but not the least, the young hearts sang a song that stands testimony to their undying spirit and enthusiasm - Hum Honge Kamyab. Maybe we should learn a lesson or two from them and get Inspired!
The enthusiastic youngsters then enthralled the audience with a synchronized group Yoga performance. The guests were impressed by the sheer energy and excitement in the air. Everyone could be seeing taking pictures on their phones and enjoying the performances thoroughly. There was a lovely PT display and a game wherein the parents of the children being treated at the OPD clinic participated. The OPD clinic caters to helping the children gain better physical control over their everyday movements, special therapists work daily with the children and parents to that effect.
The solo performance by one of the beautiful young students who was dressed in a Ghagra Choli successfully captured the heart of everyone around. A quick costume show wherein the kids were dressed as little fairies, ministers and even flowers was also part of the programme. Their cute replies when asked what they were dressed as made everyone around smile at their sheer innocence and life. What captured the audience’s attention most was the Yoga display.
The young talents coordinated their efforts and performed so well, you would wonder as to whether they were professionals or not. The previous day, (2-Dec), the Centre had celebrated Sports Day, the prizes and results of which were announced at the end of the World Disabled Day celebrations. Last but not the least, the young hearts sang a song that stands testimony to their undying spirit and enthusiasm - Hum Honge Kamyab. Maybe we should learn a lesson or two from them and get Inspired!
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